Wednesday, June 17, 2015

Day 6.

Wednesday.
Running late after being hopelessly self indulgent.  I took a long shower. I ate breakfast at a dinner-- even had pancakes.  Yes, I somehow managed to get lucky enough to live in an area with a diner that makes pancakes *I* can eat. Woo hoo. Then I ran an errand or two and went to the hospital, fully intending to get paperwork done that morning, to take to the court house this afternoon.

Insert crazed sarcastic laughter here.  Plans don't survive contact with the enemy, and Crazy Murphy was in evidence today.

Turns out, Matt was drugged due to pain.  He was in and out of consciousness, and when he was conscious he was not really in a state to do anything. He was excited, because the doctor was telling him he could sit up today, and he WANTED him to.  This made him very happy. "Sit" is the most magical word in the human language!" He told me. IN that spirit, I brought all three of his doughnut seat cushions-- even the square one.

By the time I get to the hospital, the reason for the pain is gone, and he has been taken off the pain killers, but they are still wearing off. He gets a shower and to actually get out of bed for the first time since Sunday.
So he goes into shower and settle down to read.

Shower happens. He gets out of the shower.  I hear him pad over to the toilet. Then there's a slip sliding sound and a thump.  Matt starts screaming incoherently, then cries out for help.

It takes a second, before my body engages. I'd almost dozed off and I'm feeling fuzzy headed. I go outside and look around, a tech happens by but doesn't seem that concerned. I tell her Matt fell in the shower, and the tech casually peers in. She pales and refuses to let me into the bathroom, or even to see what happened. she makes sure I stay seated inside the room, out of sight of the event and rushes toward the nursing station at a dead run. Another tech materializes to make sure I don't look into the bathroom. She talks to Matt through the door but averts her gaze.

I go from a panic to a dead calm. At some level I realize there is nothing I can do... and I am in the one place where there is a whole staff of people who do just that.   I can't really move from my chair anyway, my limbs are rubbery and full of concrete.   I can still hear Matt screaming. Alarms are going off, now.

 The next thing I know there are at least six nurses in blue rushing into the bathroom.  Then the group stops, stares, then retreats. They huddle. They ask him a series of questions that seem moronic and inane.  Things about if he lost consciousness, if he felt any pain, how he feels, where it hurts, if he can move. Even before they get him off the ground, they are taking his blood pressure.  Slowly it becomes clear that this is not a stupid thing at all... I'm just really out of it and not thinking clearly. His blood pressure had fallen through the floor while he was in the shower. He must have lost blood.. and maybe a bit of his tumor.

I mean to say, 77/58.

He says he can move, but not steadily. He can't get a grip on the slick wet floor, and he's shaky.  "Oh God, I shouldn't look in that direction!" is the one thing I clearly remember him saying.  They eventually get him on his knees, and bring a strange mechanical machine that is unpowered. Its sort of like a chair with a built in fulcrum. He is able to sit by leaning forward into the device and it closes around him, and they can wheel him up and out of the bathroom. They have covered him with a sheet and dump him on the bed.

Matt is clearly in a lot of pain. He starts crying and apologizing to me. I lay my hand lightly on his arm and he screams in pain.  I can't even comfort him physically. So I stand over him and take an extended period doing my best to offer comfort.

Day 5, Part II (abridged)


Tuesday, Continued.

Again I went to visit Matt late.  He was groggy but helpful.

 While I was there, he was moved to oncology! Hooray!

Found out he had no transfusions on day five, so the bleeding must be under control... FINALLY.

But I'm stressed out about the papers I need to fill out. I went there, but didn't really have the concentration or the umph needed to cope. I fell asleep in my chair, then jolted awake, wired.

That, my friend, is how subtle a panic attack can be.  I had no idea I was even having one.

That is, until I was dealing with crushing pain in my right arm, a stabbing pain in my eye, and pressure in my chest that didn't brook ignoring. Oh, and I was passing the ER on my way out of the hospital.  So...
why not go in for a social visit?

Yep, discovered that my heart is fine, and my vitals are approaching magnificent. But my anxiety is through the roof, and I should do something about that.

Ya think?

The arm is from some neck tension gone horribly awry. Not that this at all surprising, considering scoliosis and arthritis... and I'm a vetran at all of this stuff.

  Better safe than sorry.

 Extra special thanks to J for keeping my relative sanity up while waiting for the ER to figure things out.

Tuesday, June 16, 2015

Day 5.

I sleep in. I can't help it. I need the sleep.

I also have unrelated paperwork that will help us keep our house during these exciting events.

So I read some Honor Harrington.

But I eventually get up, make sure Matt is okay, and get some FB time, and also find the paperwork. Almost conicidentally. I get some stuff around the house done, and...

Don't really want to eat lunch. This is a bad idea.

So I made it anyway. Now I'm lost in the wonderful world of filling out government forms, while trying to extract information from a guy stuck in ICU-- under sedation.

Fun times.

Bullitens posted as events warrant.


Day 4.


Monday.

He's still in ICU. I'm groggy. I get up early and take his laptop to him, so he can make his 9 am meeting.

Except... it doesn't work out that way. sure, I get out of bed at 7, but I am tired. Bone deep, painfully tired. My joints ache, and I'm feeling sensitive to light.  I sit down to wait for my breakfast and discover I've spent an hour chatting on FB. I feel guilty.  But I finally get my food, eat it, and get on my way, with everything... except Edd, the bear I got him on his first hospital visit.

Matt is drugged out, but still bleeding.  We chat a bit, but he's in and out of consciousness. Eventually he gets a bit clearer, and tells me to go get food, and get some sleep.

I suddenly realize he's right... and I'm the one not on Delauded.

I don't remember mostly what happened today, save I got sleep.

Then I went for Indian food, and did a lightening grocery run.  But I was delayed and the rain didn't make things easier.

So I visited him late. Around 8:46... Just after the entrances closed.

 I've been sleeping on average 4 hours a night-- 5 being a good night. I'd forgotten about the time until I appeared at the hospital.  So I went in at the ER entrance, hoping I could make good on my promise to see him that evening. He was feeling stressed and it seemed bad to just leave him.

The ER nurses were awesome, conspiring to get me into ICU after hours.
Yes, the bleeding is still going on.  He's been through 4 units of blood since he arrived at midnight on Sunday.
Yet he had some wonderful news-- a cardiac doctor came up with a procedure that would work kind of like an embolism on the blood circulation system inside the tumor. He could probably stop the tumor bleed that way. Said heart surgeon was worried about complications on later surgical options, but from what Matt was able to gather from our cancer surgeon, those are less of an issue than the heart doctor would know.  We are civilians in these matters, but Matt is good at reading people, especially experts in stuff he doesn't know about.  It's helpful in his system admin job.

The radiation doctor (RD for short) still thinks that the bleed will stop from Radiation alone. He got one shot today around 2.  He was flummoxed and out of it for the rest of the day. Though that was pain from another source.

Foot note: The Blackhawks won the  Stanley Cup toinght.  I watched it on TV while wandering around trying to leave the hospital.

When I get home, I hear gunfire.  My first thought is... oh, great, so the riots in Cleveland have made their way to Gary? Is Chicago burning and I've just been distracted?!

Nope. Folks are shooting in the air in celebration. And, setting off fireworks in the rain.   Because, hockey fans. No small thing such as the weather is going to defer some hard core celebrations.  Go team!

And seriously, congratulations Chicago hockey fans. I was just cranky and startled. Promise.

Monday, June 15, 2015

Day 3.

We were just chatting about what a great day it was, while prepping for the last dressing change of the day. (No, I don't have pictures. Rejoice and be glad.)

Then a bleed started without any provocation on my part. At a notably difficult area to put pressure on.
After a few minutes of putting pressure on the thing...I notice it's not getting any better.
So I call the Ambulance. They came. They finally made it upstairs.  Scooter's missing fur made them very uncomfortable. In his panic (OMG PEOPLE! NO NO, SAVE ME MOMMY!) He was meowing at the EMT very loudly. Maybe thinking she was me?  I didn't see what happened, but she was convinced he was going to attack her.  Knowing how he can get at the vet's office, I can't really discount her statement. I scooped him up and isolated him without incident. We got him into the ER by around 1:30 ish. I left around 3:30....

And now I'm headed back before 9 hopefully.  He's now in ICU at Hospital 2.


Day 2.



Sunday
We had an early morning bleed out. I got it under control with a little pressure and moisture, so I didn't think much of it.
So tired I spaced and did not make the 10 am mass.
I did NOT want to wait until the 12:00... or go to any of the parishes that do an 11 am.
But I did anyway.  It wasn't so bad. I wish they had... different tastes for music, shall we say.
It shouldn't be an issue, and I honestly didn't hink it would bother me with such world shattering issues to deal with at home.

Somehow, it made that worse.  I've had "We are Called" stuck in my head all day. There's nothing offensive about it, nothing against God, but the insipid melody grates on my nerves. I had to fight falling asleep-- or was it passing out?-- during homily.  Did I mention that today's priest has a delivery reminiscent of Billy Mays?  His voice is curiously not grating, but he is not much affected when the mics fade out.


At any rate, I was seriously fading by the time I got to my lunch destination. They no longer make duck.  Fortunately, I wasn't faint and cranky enough to walk out.  The lamb was a lot better than I remembered it.
Kudos to the new chef.  But fix that duck problem, STAT.

Things went well until... around midnight.

Sunday, June 14, 2015

Day 1.

Some History


I admit I did not start this blog on the day we got the diagnosis.  It has already been two weeks since then. Mostly what they treated was blood loss. In fact, Hospital II happened because the Paramedic claimed he was concerned Matt would bleed out before we'd make it to the Hospital further out.

Fortunately, they figured it out. And Matt had internet access to spare his sanity. Did I mention he got work done while in the hospital?  It was a bit easier after two... or was it three bags of blood?
The schedule is right, his pallor is correct, but he really is too hairy to be a vampire.

It would be interesting to see what chemo and radiation would do to a vampire. [scribbles notes] Ahem. Now, where was I?  On Thursday he had his first chemo, the big bad where I had to stay at least 5 feet away and not touch any bodily fluids for at least 24 hours. They tossed me out of the room when they did his dressings.  Not to give anybody a break, then they put him down for a port placement, and he is wired for sound and video.  On the good side, he doesn't need to be constantly prodded for blood anymore. So... part Vampire, part cyborg?  I wonder if he's USB2 compatible...

Oh, and then they hit him with Rads.  Matt says it looks just like what you'd expect Science Fiction writers to come up with when describing nuclear medicine of The Future. Robotic arms, green lasers aiming in non obvious directions, futuristic beeping sounds and everything.  Matt enthused about this, and even caught one of the guys giving him that knowing grin. Later he admitted that jobs day with his children is, actually pretty awesome.  After all, he get to shoot Radioactive Beams at people-- saving their lives, and make a living at it!  That's almost as good as chucking explosives out the windows of helicopters over mountain ranges to trigger avalanches.  Or identifying as an Abrams Tank.  ;)

Then, on Friday, the computers were completely off line. The Rad Radiation guys were canceled. And we waited like Rick and Ilsa for Matt to go home. I'd been warned that Chemo and Rads would affect him strongly...

And this completely leaves out my oddessy with laundry, losing my dark load with the socks... I'm sure I did more than the ill fated sheet washing expedition and visit Matt, but the rest is frankly a blur.

Friday night was a very challenging thing.  But we got through it. Most of it was crap going on in my head, after seeing him so tired he seemed child like. I was a bit worried I wouldn't get him back until after the (approximately)  six weeks of treatment.

This all changed after 16 hours of sleep, and an infusion of sanity.  Yaay marriage!

This is his first complete day home from Hospital II, complete with cancer diagnosis.

Today is a Saturday.  Matt had our full on contingency talk, and I was greatly relieved about everything.  Then the bleeding started again. Fortunately, nothing like what we'd seen that sent him to the hospital, but alarming enough to be very draining in more ways than one.

  The rest of the day was equally divided between shopping (and going back for forgotten things) and dealing with bloody surgery grade dressings.  Then I had to call my folks and tell them what has been going on for the past two weeks, and remind my brother of a project with a friend of mine...

And hopefully that will still work out. The whole family is sick... and having to do both at the same time was sub-optimal to say the least.  I feel like I let a friend down, and I really, really hate that.  And no, I don't want to use the handy excuses to hand.  Because it seems manipulative and mean.

We'll see what Sunday brings.

The funny thing is, what happened today doesn't seem like much. But living it is a different story.